Video | Patient Story: Marcel (Child With Muscular Dystrophy)
Video | Patient Story: Marcel (Child With Muscular Dystrophy)
Oct 31, 2013
choosept.com
"To live, you have to breathe." Freddy Loinaz-Lopez lives with Duchenne Muscular Dystrophy, a condition that affects his ability to move and to breathe. Penn Medicine's Fishman Program allows Freddy to receive treatment at home so he can spend his time doing what he loves: making music. Listen to his song, "Breathing Is Everything", and learn more about how the program is helping patients like Freddy from Director John Hansen-Flaschen, MD. Watch Freddy's full music video here: https://www.youtub
5:45
"To live, you have to breathe." Freddy Loinaz-Lopez lives with Du…
758 viewsMay 2, 2022
FacebookPenn Medicine
9 Important Facts About Muscular Dystrophy - HRF
9 Important Facts About Muscular Dystrophy - HRF
Nov 26, 2014
healthresearchfunding.org
Bob and Irene Glover lost their son, Stuart, to Duchenne muscular dystrophy when he was just 16 years old. Stuart was their second child and developed slower than other kids. "I eventually persuaded one of the younger GPs to refer us to a specialist, because I was certain—absolutely certain—that something wasn’t right." As Stuart got older, things became more difficult. After a back operation Stuart said to Irene: "It’ll give me more time, Mum." After the diagnosis, the family became involved wi
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Bob and Irene Glover lost their son, Stuart, to Duchenne muscular dys…
1.4K viewsApr 2, 2025
FacebookMuscular Dystrophy UK
South Africa's Muscular Dystrophy Foundation Busts Some Common Myths
South Africa's Muscular Dystrophy Foundation Busts Some Common …
Jul 13, 2023
goodthingsguy.com
"It's just one other postcode and it's changed everything." Stewart lives with inclusion body myositis (IBM). When he moved 11 miles from England to Wales, everything changed. Three years later, he is still on a waiting to list to be seen about his condition. "They didn't want to know me to start with in Wales. I didn't get a neurologist. I didn't see anybody." As part of our new ten-year strategy, we will campaign and influence the NHS to end the postcode lottery. Learn more about Stewart's sto
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"It's just one other postcode and it's changed everything." Stewart live…
1.2K views6 months ago
FacebookMuscular Dystrophy UK
Taylor stopped by to say hi and share her story with us. This is the why we campout, raising money to help the families and people affected by #MuscularDystrophy. Happy Birthday Garrett ❤️ @md_canada | Edmonton Firefighters For Muscular Dystrophy
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Taylor stopped by to say hi and share her story with us. This is th…
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FacebookEdmonton Firefighters For Muscular Dystrophy
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